March 21 is a special day celebrated around the world: World Down Syndrome Day. This date is not only a time to recognize and celebrate people with Down syndrome, but also to promote awareness about this genetic condition, encourage inclusion and fight for the rights of those living with it.
What is Down Syndrome?
Down syndrome is a genetic condition that occurs when a person has an extra copy of chromosome 21. Instead of having two copies of this chromosome, as is normal, people with Down syndrome have three copies. This genetic alteration can affect a person's physical and intellectual development, although the way in which these effects manifest themselves varies considerably from one individual to another.
Down syndrome is one of the most common and well-known genetic abnormalities. Worldwide, it is estimated to occur in approximately 1 in 700 births. People with Down syndrome may have a variety of physical characteristics, such as a flattened face, almond-shaped eyes, and low muscle tone. However, each individual is unique, with their own abilities, personalities, and capabilities.
History of World Down Syndrome Day
The celebration of World Down Syndrome Day officially began in 2006. The choice of March 21 (21/3) has symbolic significance as it represents trisomy of chromosome 21, which is the cause of Down syndrome. In 2011, the United Nations General Assembly officially recognized March 21 as World Down Syndrome Day, urging all member states, international organizations and civil society to raise awareness of this condition and promote the rights and well-being of people with Down syndrome.
World Down Syndrome Day has several key objectives:
Awareness and Education: This day is an opportunity to educate the public about what it means to have Down syndrome and to challenge the stereotypes and prejudices that still persist in many societies. By raising awareness, it is hoped that people will better understand the capabilities and rights of people with Down syndrome.
Promoting Human Rights: People with Down syndrome have the same rights as everyone else. However, in many parts of the world, they still face discrimination and barriers to accessing education, employment and health services. World Down Syndrome Day is a reminder of the importance of ensuring that these people have the same opportunities to participate fully in society.
Social Inclusion: One of the most important aspects of this day is the promotion of social inclusion. People with Down syndrome should be accepted and valued in all aspects of life, from school and work to recreational activities and community life.
Celebrating Diversity: World Down Syndrome Day is also a celebration of human diversity. It recognizes that diversity is a strength and that every person, regardless of their abilities, has something valuable to offer to society.
In recent decades, there have been significant advances in the inclusion of people with Down syndrome in many countries. Inclusive education, where children with Down syndrome attend regular schools alongside their peers, has become more common. This form of education not only benefits children with Down syndrome, but also their peers, who learn to value diversity from an early age.
In addition, more and more people with Down syndrome are entering the workforce. With the right support, many people with Down syndrome can take on meaningful jobs and make valuable contributions to their communities. However, the employment rate for people with disabilities, including trisomy 21, remains low compared to the general population, indicating that much remains to be done.
One of the persistent challenges is access to quality health care. People with Down syndrome may face specific health problems, such as heart problems, breathing difficulties and thyroid diseases. It is crucial that they receive adequate medical care and that health professionals are well informed about their particular needs.
Testimonies and Life Stories
Stories of people with Down syndrome and their families are powerful tools for raising awareness and changing perceptions. Here we share some inspiring stories that reflect the diversity and richness of experiences of people with Down syndrome.
Sofia, a young woman who defies expectations
Sofía is a 20-year-old girl who lives in Santiago, Chile. Since she was little, she has been an energetic and curious girl, always eager to learn and explore the world around her. Despite the difficulties she has faced, Sofía has surpassed all of society's expectations for her. She is currently attending university, where she studies graphic design, a career she is passionate about. Her mother, María, tells how school inclusion was key to Sofía's development. "When Sofía started school, we were very worried about how her classmates would receive her. But she integrated perfectly, and today she has many friends who support her and love her as she is."
José and his passion for cooking
Jose is a 30-year-old man who lives in Mexico and works as a chef at a local restaurant. Since he was a child, he always showed an interest in cooking, helping his mother prepare family meals. Over time, that interest turned into a passion, and Jose decided to study gastronomy. Today, he is known for his delicious dishes and his skill in the kitchen. His story is an example of how the support of family and community can help a person with Down syndrome achieve their dreams.
Laura, a human rights defender
Laura is a 35-year-old activist with Down syndrome living in Spain. Throughout her life, she has faced discrimination and barriers, but has used these experiences to become an advocate for the rights of people with disabilities. Laura travels around the country giving talks and workshops on inclusion and human rights, and has worked with several international organisations to promote equal opportunities for all people, regardless of their abilities.
World Down Syndrome Day is an opportunity for all of us to get involved and support people with Down syndrome in our communities. Here are some ways you can get involved:
Participate in Local Events: Many organizations and communities celebrate World Down Syndrome Day with special events, such as walks, talks, and recreational activities. Participating in these events is a great way to show your support and learn more about Down syndrome.
Spread the Word: Use your social media to share information about Down syndrome and World Down Syndrome Day. You can share articles, videos, and graphics that educate your followers about the importance of inclusion and the rights of people with Down syndrome.
Volunteering : Consider volunteering for organizations that support people with Down syndrome. Your time and skills can make a big difference in the lives of these individuals and their families.
Continuing Education: Take time to learn more about Down syndrome and the challenges faced by people with this condition. Education is key to breaking stereotypes and promoting a more inclusive society.
Support Inclusive Policies: Advocate for public policies that promote inclusion and support for people with disabilities. This includes access to inclusive education, employment opportunities, and quality healthcare.
The Importance of Inclusion in Education and Work
Inclusive education is essential to ensure that children with Down syndrome have the same opportunities to learn and develop as their peers without disabilities. Inclusion in education not only benefits children with Down syndrome, but also enriches the educational experience of all students. By learning and playing together, children develop empathy, understanding and respect for differences.
In addition to education, access to employment is crucial to the social and economic inclusion of people with Down syndrome. Through work, people can gain independence, develop skills and contribute to society. However, many people with Down syndrome face significant barriers to accessing employment, including lack of opportunities and discrimination in the workplace. It is essential that businesses and employers adopt inclusive practices and offer appropriate support so that people with Down syndrome can thrive in the workplace.
Inclusion is a fundamental human right and it is the responsibility of all of us to work together to ensure that people with Down syndrome are valued, respected and supported in all aspects of life. As we continue to move forward, it is crucial to remember that every step towards inclusion and equality brings us closer to a more just and equitable society for all.